Samira Haruna Sanusi, is a young and courageous sickle cell awareness advocate, writer, and a motivational speaker from Nigeria.
At the age fifteen, Samira suffered some serious health complications caused by sickle cell disease, that lead her on a seven years journey fighting for her life, on a wheelchair. She has gone through about twenty eight surgeries all in the hopes of finding a cure. Her strength, her family’s perseverance and faith in God lead them to a cure in the form of a bone marrow transplant. And I am happy to say, she is now living free of the disease.
Samira has dedicated her life to raising awareness about sickle cell disease and providing financial and emotional support to under privileged patients living with the disease, through her foundation (samira sanusi sickle cell foundation)
She has also published two books “S is for Survivor”, which is a personal memoir about her struggles with Sickle Cell, and “I Wrote This For You” a collection of poetry, and philosophical quotes. With the hopes that it brings healing to the lost souls, and share her story of pain and triumphs with people going through the same struggles.
You can follow samira’s journey on
http://instagram.com/samirahsanusi and on Facebook.
In this interview, samira passed on a message to patients living with sickle cell disease, talked about her fund raising activities and set the record straight on a sickle cell popular believe.
Read the full interview below to find out more.
What is the mission of Samira Sanusi Sickle Cell Foundation?
Samira Sanusi Sickle Cell Foundation was established to intensify awareness on Sickle Cell Disorder to reduce Sickle Cell births. The foundation also provides aid to low income families living with the disorder.
What activities or events does the foundation run to raise funds?
Some of our fundraising activities include collaborating with business entrepreneurs who use their services and platforms to spread the word and encourage customers to support the cause through sales and promos.
I am aware that your personal struggles with sickle cell disease led you to start your Foundation. How passionate are you in raising awareness of the disease?
Extremely passionate. Sickle Cell can be prevented. Our future generation stand a chance of living a crisis/pain free life. All it takes is being aware, enlightened and making informed decisions. Genetic compatibility and counseling can help couples in being knowledgeable about their options, choices and decision making when starting a family.
Would you still have been involved in sickle cell awareness, If you hadn’t gone through your battle with the disease?
Probably. I was born to do this job. I believe God would have still led me to this path – with or without my personal struggles.
What message do you think is important to pass on to people living with the sickle cell disease?
You will never walk alone.
How can the public lend support to people living with sickle cell disease ?
By knowing your genotype, knowing your partner’s, encouraging your communities to get tested and informed, and helping Sickle Cell Warriors with financial, social or emotional support.Are there any popular beliefs about sickle cell that are not true, and could you set the record straight?
That it cant be cured by drinking herbs. Bone Marrow Transplant is the only known cure for the disorder. It takes genetic engineering to cure a disorder you were born with, to rectify the Sickle Cell traits you inherited from your parents.
What advice do you have for carriers of the sickle cell trait?
Be informed before starting a family. Love doesn’t always conquer all, love isn’t enough with a disorder like Sickle Cell. If you and your partner both carry the trait, find out all the available options of conceiving a child free of the disease, what it’ll cost you and the risks involved. No child deserves a lifetime of pain and suffering.
There is no doubt that you are a beacon of hope to people living with Sickle Cell Disease; who do you rely on when you need support ?
God, my family and friends who understand that sometimes, the one who is there for others also needs someone.
What challenges do you face as a Sickle Cell advocate?
Spreading awareness and making sure the message isn’t only heard but is taken seriously.
How do you unwind after a hectic?
Getting lost in a book.
Thank you Samira for taking the time to do this. More power to your elbow!
There you have it. Like she said “love doesn’t always conquer all”
know your genotype and save a child from a world of pain.